56 thoughts on “Specific Autoimmune Diseases

  1. Me and my husband have been doing the autoimmune protocol for about 5 days. I cry several times a day and feel sick when it’s time to eat. I’m hoping at this point that it is all worth it. I have acid reflux and oral lichen planus. My Husband had his gallbladder removed when he was 24 (young, thin, male – didn’t fit the profile of someone who would have problems), diagnosed with fatty liver when he was 29, and diagnosed with Primary Schlerosing Cholangitis when he was 34 or 35. He is now 37. I just ran across a post of yours on facebook that mentioned gallbladder disease and gluten sensitivity, which also mentioned PSC. So, we started the AIP. Have you known of anyone with PSC that showed improvement or at least avoided a liver transplant?

    • ThePaleoMom says:

      I’m not sure that I’ve seen any testimonials specific to PSC, but I do think the autoimmune protocol is absolutely the right choice. Do you have a functional medicine specialist who can help with micronutrient deficiency testing and food sensitivity testing? They would also be able to recommend botanicals or supplements specific liver support. I would start with the Paleo Physician’s Network and Primal Docs (you can also look at websites and see if anyone mentions Weston A Price Foundation philosophies). Good luck!

  2. KanubaEU0 says:

    Is there a specific diet for autoimmun Hashimoto’s? Thank you.

  3. Jamie says:

    My husband has recently been diagnosed with Anklyosing Spondylitis. Do you think following the autoimmune protocol would be helpful? The doctors are prescribing NSAIDs for his pain, but that seems to go completely against the idea of healing the gut… anything you recommend for managing pain while trying to heal the gut?

    • ThePaleoMom says:

      Yes, I think the AIP would be helpful for your husband. Are you coming from paleo or a normal Western diet? If jumping right in seems too much, you could try standard paleo first and then work toward the AIP. It’s very challenging to find balance between pain management and gut healing for AS (or any very painful autoimmune disease). He could try talking to his doctor about other pain management options (although that will typically put you into opioid territory, which isn’t a whole lot better). He should still see improvement on a strict autoimmune protocol, even with NSAIDs. But, I would recommend staying on the AIP as long as he is still on NSAIDs. He would have to try and wean off NSAIDs and then give some time for his gut to fully heal before trying to add any foods back in. You might also look into low dose naltrexone (lots of information on chriskresser.com). I hope this helps!

      • Jamie says:

        Thanks for the suggestions. He has been living grain free for quite some time now. I think the next steps would be to cut out dairy and sugar and see how it goes for a couple of months and then go onto the AIP. I’ve spent quite a bit of time on your site over the past week or so and have been amazed by the huge varieties of AI diseases there are. I had no idea! I have had low level eczema for my entire life and it seems to have spread and become a bit worse during my last pregnancy (4th). Our daughter (age 3) has severe eczema… as a baby it would become leaky open wounds. Now it is just super rough irritated skin, especially after she’s had a bath and in the winter. I’m considering trying to transition the entire family to Paleo… I’m shaking in my boots at the thought, but thankful for you and others like you who have made the leap before me and have have lots of tips and advice. I’m becoming more and more convinced that this is the healthier alternative for everyone. Really really appreciate your site and the way you break down the whys and make them understandable for the rest of us. Hope you are having a restful, peaceful holiday season.

  4. Robbie says:

    I’m a new fan of the podcast and must say my results are astonishing…only one week into AIP.

    I’m 7 days into AIP after a month of intermittent Paleo. My sense of smell, long ago lost, has returned. It’s a mixed blessing, but that’s not important now ;) . I’ve gone down on my Advair dosage over the last 3 weeks and my asthma is under control. I’m a lifelong severe asthmatic (for most of my childhood I was on 60 mg of prednisone a day, slept in oxygen tents, and had to get the occasional mainline adrenaline shots when even that wouldn’t handle it) and I’ve had sinus surgery, so these developments are VERY hopeful.

    What I’ve found is that I am not experiencing cravings at all. Also, I’m finding that I’m fasting intermittently without thinking about it. I am so sated and content with Paleo meals that the anxiety and whirlwind of cravings just LEFT. I felt a little like a chicken in Oklahoma, where they say, “When the wind stops blowing in Oklahoma, the chickens fall over,”. As a food addict and lifelong binger, I expected to get some significant cravings, but I feel as if I’m free of them at this point. I feel so cared for with Paleo, because I know that no matter what I’m craving, I can have some semblance of it, even on AIP. I can have sweet, creamy, salty, etc. So I have no anxiety about what I’ll be able to eat next. Plus, I just feel *nourished*.

    I’m very much hoping that the periods of non-hunger are related to a healing metabolism; I’m hoping that it’s my body simply saying, “Nope, don’t need more food just now, got something to burn over here for now,”. I’m 40 pounds overweight, so I’d like to think that’s part of what I’m experiencing.

    Thanks for recommending Practical Paleo. It’s an excellent guidebook. And thanks for your podcast. You guys inspire me!

    Take care,
    Robbie

  5. Jenny says:

    Hi – I’m new here and will be following along and learning all about this. I think it may help me. I suffer from rheumatoid arthritis, scleroderma (just a few spots on my legs so far), and raynauds. My dr also thinks my thyroid is involved – will get blood test results in a couple of weeks – do you think the Paleo diet can help me? Not one of the dr’s I’ve been too (in the 4 years since I’ve been diagnosed) has ever mentioned nutrition – just pharmaceuticals.
    Thanks!

  6. Connie says:

    Do you know much if anything about diet and Polymyositis?

  7. Kelly Coan says:

    Hello!
    Thanks in advance for taking the time to answer this. I see you have narcolepsy listed specifically as an autoimmune disease. I can tell you that the health insurance companies don’t yet classify it as that, although they’re hardly on the leading edge of science! Do you know of anyone who specifically has narco and did the AIP? I’m almost done with a whole 30 and feel nominally different.

  8. Sarah says:

    Wondering if anyone uses the paleo diet to help if PCOS and getting pregnant. Have you heard of this?

  9. Brittney Blackburn says:

    Hi I am very new to all of this and just heard about this last friday. I was diagnosed with a fatty liver in my early 20′s and then broke out with a horrible rash that no doctor could determine what it was for over 10 years. Just 2 years ago a dermotologist diagnosed me with a very rare TCell lymphoma called mycosis fungoides which is an autoimmune disease. I have undergone all kinds of treatments to light therapy to pills to creams and nothing seems to work. although it is only covering about 10% of my body it still makes me feel uncomfortable and I am wondering if this will work? and where do I begin? Thank you in advance.

  10. Kristy says:

    Hello! I just came across your blog and I can’t stop reading it! I have Hashimoto’s Disease and I have alopecia areata. I am 31 and have had the thyroid issue for the past 10 years, it has been very disheartening. I like the natural approach and I would love to hear your input on my issues. But mostly, when my husband deployed last year, when he came home in July, our 4 year old son lost quite a bit of hair in September. The Dr.’s say it is stress related but I just hope that he doesn’t have an autoimmune disease like the alopecia like I do. Have you heard of anyone that has been helped with this condition? I am in tears writing this, it is bad enough that I go through it, BUT NOT MY SON… I would love to hear from you and your input! Thank you so much!

    Kristy

    • ThePaleoMom says:

      Are you following a paleo diet?

      • Kristy says:

        I just started about a month ago.

        • Kristy says:

          We do not eat a Standard American Diet. I have avoided processed food, kept to organic fruits, veggies, meats. I did lean toward more of a vegetarian diet for a while, not very strict, I still had eggs for my son and some meat, but I do not think it was enough. I did breast feed him for 2 years and make freshly extracted veggie juice and whole food smoothies. I have been very health conscious from pregnancy to now and even before then. But now I am leaning toward getting off all grains and legumes. We have been eating Paleo for like a said about a month. Thank you so much for your time! You are quite a blessing to have found!

  11. Nora says:

    Hi, I accidentally found this site, so very new here and not familiar with anything on here.
    Except that I have been suffering for a long time with Systemic Lupus, and chronic constipation. Bloated all the time, swellon of the joints and pain and more. I have stop conventional medicine and been feeling a little better by adding vegettable juicing mainly greens to my diet. Now I still have a sugar addiction, as well as starchy foods.
    But overall the constipation is the worst, as I can go days without going. Any help in breaking this addiction, and healing my intestinal issues for good?
    Please any help will be appreciated.

  12. Nora says:

    Hi again, wanted to include my email here, as I am not sure how to start.

  13. Andrea says:

    Hello,

    I have just found your website this past weekend looking for a bread recipe and I am pretty excited I have found you. looking forward to the book coming out.

    I have pretty bad food allergies and pcos. i’ve been suffering with chronic uticaria for 8 months on my face of all places and it had gotten so bad last month I was on 40mg of prednisone daily for 3 weeks and i am now in the process of weaning off. The allergist is a bit dumfounded about why this is so bad. he had me tested for lupus, cancer, arthritis and everything inbetween. everything came back normal. the only thing i can think of that was aggravating the latest bad bout of hives is I was eating a wheat something 3 times a day for a month straight and I have been under a great deal of stress for well over a year (yes, I’m working no that too).

    since i have cut wheat, I have almost completely cut rice and my worse allergy is corn (anaphylaxis guaranteed). I am working on candy (honey and beet sugar -allergic to rest). I know an allergy is an autoimmune something but what exactly I do not know. what would you recommend for me?

    • ThePaleoMom says:

      I would suggest transitioning to a nightshade-free paleo diet as a first step, try and get as much sleep as you can and manage stress as best you can. Give that 2-3 months, both to see if it helps but also to adapt to more time in the kitchen, fewer convenience foods etc. If that isn’t sufficient, the autotimmune protocol is the next step.

      • Andrea says:

        thanks for that. now that i think about it, I have been eating eggplant since the holidays and that is when the hives turned bad. I generally dont touch eggplant because in the past it would make my joints all ache the following day but that doesnt happen anymore. I do eat tomatoes regularly so I will drop them today and see how it goes and try my best to give up my beloved potato chips. so sad :( with prednisone i’m on this is going to hurt but I will try.

        • karin says:

          I also suffer from CU & have gone strict Paleo for the last 3 weeks. I was hoping to be feeling great by now but have had some bad flare ups. This is most likely caused by salicylate intolerance–which makes eating fruit & veggies more difficult because so many high salicylate varieties need to be eliminated. So far I have identified dried fruit, nuts (all), coconut, peppers (all), and leftover meat (high histamine) as probable issues. I’m also eliminating eggs for a while to see if there is any issue there. At least I don’t have to worry about gaining weight since there isn’t too much left to eat. Haha. Happy to find this blog but would love to hear any more information about chronic urticaria specifically–there is so much conflicting information out there that it’s hard to know what to do!

  14. Blair says:

    First, thank you so much for having this website. I was recently diagnosed with severe oral lichen planus and this is one of the only places I can find extensive information on how to deal with it! I was recently taken off of cyclosporine which calmed the reactions down significantly. I am now looking to figure out a way to live without eating certain trigger foods. I am learning, but its a very slow process. Should I try the AIP? Do you have any other suggestions? I dont want to go back on the cyclosporine :/ Thank you in advance

    • ThePaleoMom says:

      Yes, i definitely recommend the AIP, with a strong focus on nutrient dense foods (fish, organ meat, lots of non-starchy vegetables) and probiotics (fermented foods or a good supplement like Prescript-Assis). Sleep and stress management are also crucial.

      • Blair says:

        Thank you… I have had regular acupuncture treatments which seem to help calm the reactions down too- a fantastic Dr. here in Florida has helped me out so much. I will start on the AIP – first step is to learn all about it. Cant wait for your book to come out. I will continue to check your website regularly.

  15. Renee Kofonow says:

    I have had fibromyalgia for 21 years now. I haven’t found anything to help with the terrible pain and fatigue. I’ve tried all kinds of supplements, medications, acupuncture, acupressure, chiropractor, and massage therapy. I have been off all gluten for two weeks and still feel the same. What am I doing wrong?

  16. Brock says:

    I have myositis. I have been on AIP for 4 months and following it pretty strictly. I have been on prednisone for the same length of time. I am nearly completely off of prednisone but joint pain is returning to its original state. I could sleep better but many nights I have trouble shutting off my mind — I typically get 5-8 hours a night. Constipation is a little bit of problem too, although it is better when taking probiotic pills. I could do better at eating bone broths, probiotic foods and organ meats but I do eat wild Alaskan salmon almost daily and pastured meats. Otherwise, I avoid all of the foods you say to along with the cross reactive ones. Can you offer any advice or motivation?

    • Brock says:

      Also, I’m a 28 year old male if that matters.

    • ThePaleoMom says:

      So, for as long as you are on prednisone, you are going to be cortisol receptor resistant and have that stimulus for a leaky gut (cortisol, which is what prednisone is, opens up the junctions between the cells that line your gut)…. But as you go off, and keep your diet really clean, it should be easier to get better sleep (that’s super important) and it should be easier to heal. Taking digestive enzymes with your meals and a magnesium supplement may help the digestion. The biggest things are going to be stress management to get your cortisol regulated and improve your cortisol sensitivity and sleep. Hang in there, because the’s going to be a lag between getting off cortisol and starting to really heal. But once it comes together, it will really come together. If you’re still having trouble sleeping after you are completely off the prednisone, let me know and can talk about sleep hygiene and safe sleep aids.

  17. Christine says:

    About 4 months ago I was diagnosed with undifferentiated connective tissue disease with my primary symptom being joint pain. Over the past two months, my symptoms have rapidly progressed. I now have joint swelling and greatly increased pain. I wake up very stiff and most mornings it takes at least 2 hours before I can get loosened up and on top of the pain. I am exhausted all of the time but have difficulty sleeping at night. I am a very conscientious and organized person, yet I have been forgetting things and feel like I am in a mental fog most of the time. I am only 30 and have 3 young children to care for. I am greatly discouraged by this deterioration. I have stuff to get done! I attempted a gluten free diet for a month with no improvement; in fact, symptoms continued to get worse during that time. My rheumatologist wants me to start taking Plaquenil, but I am very uncomfortable with this medication. My husband and I have decided to attempt a Paleo diet starting this Wednesday. Do you think that this will help me? If it isn’t going to help, then I feel I need to start taking the medicine because I am worried that permanent damage is being done to my joints. I have no “gut” symptoms, which is why I am unsure if diet will really impact the autoimmune process. Thank you for your time!

    • ThePaleoMom says:

      Yes, I absolutely think changing your diet will help. I have spent the last few months researching the link between diet and autoimmune disease and there really seems no question that the two are connected, even if you don’t have gut symptoms.

      Check out my menu on autoimmune diseases. A standard paleo diet may work wonders and that’s definitely where you should start, but you might need to go the extra step and do the autoimmune protocol. Making homemade bone broth or including a supplement like Great Lakes Collagen or Gelatin will help with the joints. You might also look into Fermented Cod Liver Oil (I recommend Green Pasture brand, either oslo orange or unflavored) which has necessary vitamins for joint health too.

      Also, doing whatever you can to get better sleep will help. Being outside in during the day and then wearing amber-tinted glasses (typically about $10 off amazon) the last 2-3 hours before bed should help, avoiding caffeine, and sleeping in a completely dark room (I put duct tape over all the LED lights in my bedroom). Also, napping if you need to and get the chance with your kids is a good idea.

      There will be a lot more information in my book but all the basics you need to get started are on the blog.
      I hope this helps!
      Sarah

  18. John Masiulionis says:

    Good evening. Have been trying to correct leaky gut/IBS on my end for the past several months. Have done a good job (losing 75-80 lbs. since August 2011, when my problems began with sinus issues), but I have been battling more inflammation and food allergies specifically over the past month or so. Seems like I am getting a reaction to everything! Also, I’ve been battling chemical sensitivities (ex: car detailing), plus I also have a very high mold sensitivity. I am looking to get on a rotational diet, eliminate grains and sugar, but also get in the ballpark of 1800-2000 calories per day, as a lot of the weight I’ve lost (from XXL to M) has been from not enough calorie consumption. My upper/lower abdominal discomfort, along with low back pain has been flaring to a very high degree, and I need some help big time! Any ideas.

  19. Deb says:

    I have sjogren’s syndrome & have been told that I have a “lot” of arthritis when getting xrays, but not sure what that means. I am trying to eat paleo exercising daily which has greatly helped. The inflamation stays down pretty much until the evening when I am sitting, Pain comes and goes. I stopped taking the mobic & hydroxychlorquine 3 months ago but just started the hydrox… again as I’m afraid of the damage to my joints. I also take pilocarpine Hcl 5mg up to 3X daily for help with saliva. What do you recommend?

    • ThePaleoMom says:

      I’m surprised your doctor recommends hydroxychlorquine since it’s been shown to be very ineffective in Sjogren’s (see here http://ard.bmj.com/content/52/5/360.full.pdf ) although maybe he/she’s thinking more about the arthritis? I really don’t like any of the DMARDs (although TNF-alpha inhibitors seem to be the least bad). Taking fish oil supplements and high antioxidant diets have been shown to dramatically improve arthritis pain and reduce need for pain medications. I would basically recommend something like the paleo autoimmune protocol, working hard to increase omega-3 intake (fatty fish several times per week), eating lots of vegetables and glycine-rich foods (bone broth, organ meat, gelatin, collage supplements). I would stay on your meds until you start seeing improvement and work with your doctor to wean off (the saliva issues should be improved too). Also, lots of sleep and continue with exercise.

  20. Angela says:

    My daughter was diagnosed with Bechet’s Disease a few months ago and has been on prednisone and methotrexate shots (a chemo drug), but they have not been terribly helpful with her sores. My husband and I crossfit and have eaten paleo off and on for challenges and thought switching our daughter to paleo might help. Our entire family has been gluten free for over six months but transitioning a 6 yr old to a paleo diet with school lunches has been difficult. After reading about the AIP diet I’m wondering if that might be more helpful or if we should just get her completely accustomed to paleo before being even more restrictive…

    • ThePaleoMom says:

      I usually recommend getting completely accustomed to paleo first, but usually also suggest avoiding nightshades and increasing fish, organ meat, and bone broth. Methotrexate is a pretty terrible drug, so it would be good to get off it as quickly as possible (it increases intestinal premeability, so does prednisone). But, they are very difficult drugs to stop if you don’t have diet dialed in first. Basically, you can start weaning off the drugs once the diet is clean enough that you are seeing improvement in symptoms (that usually means full AIP but some people find that paleo or nightshade-free paleo is enough, so it is worth trying first).

  21. Angela says:

    Thanks for your reaponse! We’re overhauling our kitchen and paleo shopping today to start cooking tomorrow. Fingers crossed, I hate seeing our little girl in pain and also on such strong meds!

  22. Deb says:

    Thank you! He probably is thinking the arthritis. He did the hydroxyclorquine as when trying the stronger meds, I would develop lesions. Just to make sure, if I do the autoimmune protocol, I should stay off the mobic? I will be starting in the am!

  23. Amanda says:

    Hi There!

    So I keep searching for it but I haven’t seen anything about T1D. I was diagnosed 3 years ago and it’s definitely been a battle. I have all the symptoms of Hashimoto’s (cousin has it) but after biopsy of a goiter blood levels keep coming back normal. My mom after years of thinking it was Fibromyalgia has tested positive for Lupus and my dad has RA now like my grandmother. Feel like I’m being hit with autoimmune from all sides so I’m ready to fight back.

    As for the diabetes what would you suggest? I’ve read your AIP stuff would it all pertain to me? Do I just start cold turkey Paleo & AIP? Thanks in advance!

    • ThePaleoMom says:

      I typically recommend starting with standard paleo and seeing how far that gets you as a first step. But yes, the AIP is definitely appropriate for T1D. And with your family history, you will probably end up on the AIP at some point. :) But, it’s less overwhelming if you do standard paleo first.

  24. Beth says:

    I have a few questions about AIP…

    I’ve been Paleo now for about a year. I started on it because I knew I was gluten intolerant, but was eating way too much sugar….when I started looking for low-sugar/no-sugar gluten-free recipes, everything seemed to point me towards Paleo. It was great at first…I had more energy, slept better, and just felt “healthier”. Lately however, my gluten intolerance seems to have “spread” though, to all other grains (corn too) except white rice, a few months ago eating apples and pears became a problem for me, and just a few weeks ago chocolate began giving me problems. I get very painful bloating when I eat any of these (same reaction as when I used to eat wheat in the past). Too many nuts can also give me the same problem, so I have to really watch my nut consumption. I also seem to have a problem with any type of alcohol — if I have too much, I get really pale and bright red blotches show up all over my face, neck, and chest. I rarely drink anyway, but now I just avoid it completely. My doctor wants to test me for allergies and he referred me to a colon doctor to rule out diseases….

    Anyway, my doctor did talk about elimination diets, and that when I thought of AIP. Do you think it would be helpful for me? I’m guessing I have a leaky gut, and maybe fructose malabsorption, too…but that’s just my own thoughts. I’ve read a lot of different things about healing my gut….avoid nightshades, avoid FODMAPs, avoid sugar and grains (obviously), eat lots of veggies (although I’ve read both to avoid starchy veggies because of carb content, and to include them because of the soluble fiber…..also I’ve read to both avoid and eat lots of leafy greens: avoid because they’re harder to digest, and eat because of vitamins…). I guess I’m just confused about what to actually eat and what to avoid. Seems like meat is the only “safe” food….if I go AIP, I’m not sure what fruits and veggies I should be eating or avoiding. Nightshades are simple for me to avoid, FODMAPs much harder (there are sooooo many of them!!) Or should I just avoid the apples/pears because I know I have a reaction to them? Sorry….this is long…I’m just so confused about where to start!! Any info you could give me would be greatly appreciated!

    Beth

    • ThePaleoMom says:

      I know there’s A LOT of confusion about fruits and veggies. I’ve made sure to spell this out very clearly in my book and also hopefully resolve some of the areas where different people are recommending different things, since I’m been very meticulous about my research on these points. The only fruits/veggies to avoid are nightshades and legumes. If you think you have FODMAP sensitivity, then you should avoid those too. You should be eating the rainbow, and trying to get something green with every meal. And you should be eating lots of veggies (both soluble and insoluble fiber are important–if you have trouble digesting the fiber, take digestive enzymes with your meals and limit yourself to cooked fruits and vegetables until your digestion improves). Fructose intake should be between 10-20g per day, which translates to 2-5 servings of fruit per day (depending on which fruit and how you define serving). Blood sugar regulation is important, so you just don’t want to go too nuts on starchy vegetables and fruit, but unless you are prediabetic, obese, diabetic, or have metabolic syndrome, you should be able to handle quite a bit before blood sugar levels are a problem. You don’t want to go too low carb since that can put a stress on your thyroid and stimulate cortisol secretion. I hope this helps.

  25. Pam Scott says:

    My daughter has interstitial cystitis. Do you believe that is an autoimmune disease?
    Pam