Guest Post by Angie Alt: The Compromises of Autoimmune Disease

March 20, 2013 in Living with Autoimmune Disease

Angie AltAngie Alt is wife, mother, world traveler & blogger. She’s also a warrior in the autoimmunity war. Angie confronts three autoimmune disorders each day, including Celiac Disease, with powerful management techniques like AIPaleo & the Paleolithic lifestyle. She blogs regularly about the emotional side of tackling autoimmunity, adopting Paleo, and how it impacts her, her family, & their way of life. You can read more by Angela Alt at her blog and connect with her on Facebook.

The following is a very personal story, but I think it is a familiar one in the autoimmune community.  After much discussion with my husband, I’ve decided to share here.

 When it comes to dealing with the realities of an autoimmune disorder (or multiple disorders, as the case often is), I am a firm believer in a positive outlook.  Basically, if I didn’t try to keep it “on the sunny side,” I’d be in trouble.  An AIer makes alot of compromises and some of them are heartbreaking.  It would just be endless depression if I focused on all that grief all the time.

 That being said, recently I’ve had to look closely at some of those losses.  I found myself in situations where I needed to articulate my emotions about them.  It turned out to be a cathartic exercise and I thought I would write about it for The Paleo Mom, since it is such a big part of living with autoimmunity.

 One of my greatest losses was fertility.  I actually have a child.  My daughter was born when I was in my early twenties.  At the time I had no idea that my journey with autoimmunity had begun with the birth of my baby.  I was even less aware that I would one day be facing secondary infertility.  I’d just had a baby; naturally it did not occur to me that when I was ready to have my second, it just wouldn’t happen.

 When that reality did sink in, three years after we started trying, I wrestled with so much pain.  My husband and I had been so excited to add to our little family.  There were times that disappointment felt like it had swallowed my heart.  I didn’t dare walk by the baby clothes in a department store and I never allowed myself to think very long about my daughter without a sister or brother.  Those tiny clothes or the idea of happy, giggling siblings . . . both constantly threatened to bring me to tears.  I focused hard on how lucky I was to have my beautiful little girl and worked tirelessly not to let envy eat me up when all our friends started having babies and growing their families.

 A lot of time has passed since the first glimmers of hope for a new baby.  It’s been six years.  Half of those years, I was so extremely ill that I could barely think about the dashed hope.  Honestly, I often told myself that it was better . . . I could barely care for my own sick body, so it was better that I didn’t have an infant or a rambunctious toddler.  Then I got a diagnosis and began the slow climb to health.

 Knowing what caused my infertility hasn’t been much of a comfort.  As I have learned more and more about autoimmunity, I have realized that despite my best efforts at healing, I might never regain fertility.  It might be one of the things that have been irreversibly damaged by AI disease.  Worse yet, pregnancy might even pose a huge risk for me, resulting in even greater autoimmune struggle.

 I often think, if I could heal enough to recover fertility, I would just endure any autoimmune flares for the joy of a long wanted baby, but that would also mean undoing hard mental and emotional work my husband and I have done.  We decided a few years ago, after I’d had laparoscopic surgery, that we were okay with our family being just the three of us.  We have concentrated on raising an awesome kid and started to plan for being young empty nesters.  Starting over with the sensitive ups and downs is not a simple decision now.

 Sometimes my husband and I still talk about the names we had picked out in the beginning, when we thought it would happen easily.  I’m not sure if we still love the names or if we have both decided, without any discussion, to stand by them loyally.  We’ve accepted the infertility as the collateral damage of autoimmunity, but it seems a bit wrong to give up on the names for a little life we thought would be.

 I know at times it seems unimaginable, but I have actually gained some incredible things in my life due to my multiple autoimmune diseases.  Even with the gains, I think a big part of keeping a positive outlook is occasionally taking a minute to reflect on all that was compromised.

Guest Post by Angie Alt: Unexpected Paleo

February 21, 2013 in Living with Autoimmune Disease

Angie AltAngie Alt is wife, mother, world traveler & blogger. She’s also a warrior in the autoimmunity war. Angie confronts three autoimmune disorders each day, including Celiac Disease, with powerful management techniques like AIPaleo & the Paleolithic lifestyle. She blogs regularly about the emotional side of tackling autoimmunity, adopting Paleo, and how it impacts her, her family, & their way of life. You can read more by Angela Alt at her blog and connect with her on Facebook.

You know what I am sick of . . . and I’m surprising myself saying this, but seriously, I’m sick of hearing about how Paleo is so easy.  It seems like I read story after story all day long about how adopting Paleo was the easiest thing that “Paleolithic John” ever did for himself.  As someone trying hard to manage autoimmunity with AIP, I’m not sure I can bear one more blow-by-blow narrative about “Paleolithic Jane” eating awesome buffalo chili and nut-flour based cookies while simultaneously achieving a perfect weight, spending peak sunshine hours outside soaking up rays, AND kicking butt at her job with all her new, incredible energy.  Really?  It was no big deal?

 Paleo takes commitment, planning, and often, to be honest, bucks.  Convenient?  Not always.  Spontaneous?  Not really.  The truth is that Paleo is not always easy and certainly not effortless, but somewhere along the path you might notice some unexpected benefits.  The more annoyed I felt about the “Paleo is super easy, but also transformed my life” stories, the more I tried to focus on the unanticipated rewards that this lifestyle has offered me.  The following are four of the reasons I keep working at the Paleo ideal, despite the fact that it is, (shhh, don’t tell Paleolithic John & Jane) hard work.

 1)  I spend more time with my family.  Real time.  We don’t rush to the next event while chowing down the fast food we were forced to pick up on the way.  Following a Paleo diet means a lot more work, more than just one person can do (and not sleep in the kitchen anyway).  We plan meals together, we cook together, we eat together and we clean up together.  My daughter and I pick out new Paleo-fied desserts and learn how to make them together.  My husband and I high-five each other and joke about being stellar chefs when we get a new roast recipe perfect.  Somehow this simple act of changing the kinds of food we eat, has changed how much time we spend together and the value of that time.

 2)  This seems a little strange, but not having as many choices, has made me less stressed.  I don’t go to the grocery store worried about missing the sale on the best salad dressings, I don’t worry about trying to fit in a trip to Dunkin’ Donuts before I get to the office, and while overall Paleo takes a lot of planning, the basics of putting together a meal are straightforward.  I need to eat meat, veggies, and fat with a little fruit and I need to drink water.  I have plenty of choices to navigate every day, making food choice more streamlined makes me a less stressed lady.

 3)  So, this follows . . . I appreciate the good food more I have left over when all those extra choices are eliminated.  Much more.  I made pork roast with just oregano and garlic the other night and it was the most delicious thing I ever put in my mouth.  My food is yummier than it used to be and I think it is because I eliminated all the “clutter.”  It might also be that I don’t feel awful right after I eat, that’s a biggie too.

 4)  I have become more thoughtful about my priorities.  Doctors have judgment about how I’m eating.  Friends, family, etc. think I am taking it way too far with this Paleo stuff.  I know it is working though, so I keep on going against the grain (pun intended).  I don’t believe that risking my health or my family’s for the sake of going with the flow is a legitimate choice anymore.  It’s not always comfortable to stick with it though and that has forced me to truly clarify my priorities.  Clear priorities mean a more confident me.

 The clear health benefits I’ve experienced by following a Paleo template obviously make it worthwhile, but those benefits were hard won.  Adapting to the Paleo life is truly a work in progress.  I’m finding that all that effort is showing up in lots of unexpected places and inspiring me to keep putting my health first.

Guest Post by Angie Alt: Giving Up the Poisons

January 28, 2013 in Living with Autoimmune Disease

Angie Alt is wife, mother, world traveler & blogger. She’s also a warrior in the autoimmunity war. Angie confronts three autoimmune disorders each day, including Celiac Disease, with powerful management techniques like AIPaleo & the Paleolithic lifestyle. She blogs regularly about the emotional side of tackling autoimmunity, adopting Paleo, and how it impacts her, her family, & their way of life. You can read more by Angela Alt at her blog and connect with her on Facebook.

Nine months ago I decided to start my own personal health revolution.  I was very, very sick and tired of being very, very sick and tired.  I had tried everything, been to every kind of doctor.  Through an intensely difficult process (that often literally involved me begging physicians to help me) I had finally been accurately diagnosed, but there did not seem to be any hope for healing.  In my last ditch effort, I adopted the Autoimmune Protocol and immediately felt the sweet relief of healing beginning.

 AIP is not easy.  It is a very restrictive version of Paleo and figuring out how to prepare tasty meals with so much limitation makes it a tough transition for many.  Surprisingly, it was not a very difficult shift for me.  I attribute this to my desperation.  I was absolutely committed to regaining my health . . . basically, I felt the other choice was probably a slow, painful decline to an early end.

 I happily rid my self and my kitchen of the poisons.  As the months have flown by and my energy and strength have gradually returned, I’ve begun to think more carefully about the other places that toxins lurk.  I’ve put an incredible amount of effort into changing my diet for optimal health . . . I don’t want anything to threaten that hard-won ground.  The more I learned about it, the more I realized that most of the poison left in my life is coming from so-called “beauty” products.  Managing multiple autoimmune diseases is a delicate task; even the chemicals in my beauty routine could be detrimental.

 Sooo, a few months ago I began the process of switching to a natural beauty plan.  I started with my body soap, then I changed my body lotion and then how I approach shaving. Next I changed how I handle facial care and recently I started experimenting with my hair care.  Guess what?  I am finding it much, much harder than switching my diet.  Why is that?

 I think it is fear.  Changing the way I ate was a huge adjustment and it did affect my social life (I almost never eat out and I bring all my own food to social gatherings), but I wasn’t really worried about what people would think of me.  BUT what if people think I look bad?  Changing my beauty routine might mean that I don’t look as good (at least during the switch, while I’m trying to work out the kinks).  How can I face that possibility?  We have a powerful, multi-billion dollar beauty industry that tells us everyday that we need to achieve unrealistic standards, all of course, with the help of their products.

 It has been humbling for me to realize over the course of this journey how focused I’ve always been on some of the superficial aspects of life.  I first noticed this about myself when I began taking stock of the impact that autoimmunity had made on my outward appearance (especially in the time since 2009 when I was most intensely ill).  I found myself actually grieving the effects on my skin, my shape, and even my hair.  I decided to tackle that part of me, the one so focused on outward appearance, by being open about it on my own blog.

 I still have a long way to go in both tweaking my new natural approach to self-care and silencing the insecurity demons.  As I write this, I’m adjusting to the No ‘Poo Method and the oil slick I call my hair is calling out, “You look terrible.  Give in to the beauty industry ads.  Go back to shampoo.”  (Absurdly, in my mind, my oily hair is a nemesis being paid by the beauty industry to taunt me.  LOL!)  I’m sticking to it though.  The more my health is restored, the more I prove to myself that I am not beholden to the messages of Big Food, Big Medicine, and Big Beauty, the more confidence I gain.  And really, what is more attractive than a person glowing with health and confidence?  It is totally worth giving up all the poisons.

 (As a little motivator for ladies considering the switch themselves . . . my husband has loved my transition to a natural beauty routine.  He thinks my hair is softer & nicer to the touch and is glad to be rid of the harsh smells of alcohol-based products.  It sure helps to have such an adoring fan.)

Guest Post by Angie Alt: Accepting My Paleo Imperfection

January 5, 2013 in Living with Autoimmune Disease

Angie Alt is wife, mother, world traveler & blogger.  She’s also a warrior in the autoimmunity war.  Angie confronts three autoimmune disorders each day, including Celiac Disease, with powerful management techniques like AIPaleo & the Paleolithic lifestyle.  She blogs regularly about the emotional side of tackling autoimmunity, adopting Paleo, and how it impacts her, her family, & their way of life.  You can read more by Angela Alt at her blog and connect with her on Facebook.

I’m a perfectionist.  Sigh . . . I wish it weren’t so, but it is.  I have always, always wanted all the details of everything I do to be flawless.  It doesn’t stop with just the things I do though, it is also who I am . . . I want that to be perfect too.

 In part, I happily ran down the Paleo path, because Paleo is aiming for ideals.  Ideal digestion, ideal blood sugar regulation, ideal vitamins and minerals from ideal foods, ideal body weight, ideal strength, ideal rest . . . and for people like me taking it that extra-step with Autoimmune Protocol, ideal disease management.  To begin with, it was a very complicated internal process for me to even wrap my mind around my autoimmunity.  “You mean my body is not functioning perfectly?”  I felt like I had done something wrong.  I’d made a mistake and naturally I had to make a major correction.  I knew immediately that the less than ideal standards of typical western medicine were not going to cut it for my perfectionist personality.

 Although I still have four months to go before I reach my first “paleoversary,” we are rapidly nearing the end of the calendar year.  Just like millions of other people I have been thinking recently about what I achieved in the past year and what I want to achieve in the new year.  The more I thought, the more I dwelled on all I have not yet accomplished on my Paleo journey.  I don’t eat organic, grass-fed meat or wild-caught fish 100% of the time yet.  I am coming from a starting point of extreme illness, including Celiac Disease, so I know I need supplementation, but I still haven’t worked out exactly what supplements to take and the best sources.  I don’t have a good routine put together yet for getting outside and using my body.  I haven’t mastered my sleep patterns.  I don’t have a good stress management process down.

 I have the terrible perfectionist habit of focusing on the areas that I think might be substandard.  As I contemplated the past year and tried to begin mentally planning the new one, I didn’t take any time to focus on the remarkable successes.  I had finally gotten a name for what was wrong for over a decade, Celiac Disease.  I had discovered a path to healing through Paleo and jumped head first into the Autoimmune Protocol.  Through careful AIP discipline I brought my gluten antibodies from 161 to only 1 point outside the normal range.  I learned literally volumes about real nutrition and almost without trying put together an awesome support network.  Most importantly, I started using my blog to write about the emotional side of tackling autoimmunity and adopting Paleo as a way to connect with and offer support to others in similar situations.

 Learning about Paleolithic nutrition and spreading the word from the basics all the way to the emotional triumphs and challenges culminated for me this week.  My co-workers asked me to give a presentation on Paleo.  I prepared everything meticulously (ugh, perfectionism) and then passionately gave them my pitch.  At the end of it, every single one of them decided to start the new year with Paleo.  I was so excited and will totally be cheering for them in their personal health resolutions.  And then it occurred to me . . . over and over during the course of my talk, I had emphasized to them that this was a process, that they should not get bogged down in rules, that they should take their time adapting to this new template for living . . . that it was not important to be perfect.  I was encouraging them to go easy on themselves, while I was silently running myself down about all the ways I have not yet achieved the Paleo ideal.  (I think those of us using Paleo to manage disease are particularly at risk for being too hard on ourselves about achieving perfection, since it can mean profound differences in our physical health and emotional well-being to get it all down just right.)

 The truth is, given the time and budget I have to work within, I am doing the absolute best I can in terms of food quality.  Long-term undiagnosed Celiac Disease means sorting out proper supplementation and finding high-quality, affordable sources is a larger work in progress, but I continue to work at it diligently.  I’m working hard to find the time between working full-time, being a wife and mother, and taking time for my passion, writing, to get outside and move my body.  I’ve had the sleep rhythms down a few times over the course of my Paleo adaptation and I am sure I will find my way back again.

 But then there is still that lacking stress management plan?  Maybe it should start with acceptance of my Paleo imperfection?  I, as a human being, am by nature one long work in progress.  How did we get here from our primal ancestors anyway, if it isn’t all about building one piece at a time to reach an ideal?  I am moving in the right direction.  I can feel it in my cells.  I am getting closer to the ideal and that is what counts.

I owe Angie an apology for not posting this post before New Years.  I hope this post will resonate with all of you the way it does for me and still seem timely as we contemplate and tackle our own New Years resolutions.